Exploring Means to Free Data For Non-Interventional Healthcare Research

21 January 2020

09:00 - 09:30

Coffee & registration

09:30 - 10:00

Why free access to data is necessary to improve outcomes for people 

10:00 - 10:45

Challenges under existing EU and national laws

10:45 - 11:00

Coffee break

11:00 - 11:30

Continued discussion of challenges under current legal regimes

11:30 - 12:30

The concept of ethical data review boards and applicability to this problem

12:30 - 13:30

Lunch

13:30 - 15:00

Brainstorming necessary steps to achieve ethical data review boards that are seen as being legal, fair and just

15:00 - 16:00

Plan to move forward

16:00

Adjourn