28 July 2015

08:30-08:35

Welcome and General overview of the conference - Jennifer Harris

08:35-09:15

Introduction to BioSHaRE:

BioSHaRE output in tools, data and knowledge – Ronald Stolk
Tools pipeline for data sharing analysis and enhancement - Anthony Brookes
ELSI approaches and services - Bartha M. Knoppers

09:15-12:00

Parallel sessions – Data sharing tools, ELSI and results

09:45-12:00

Stream 1: Tools for data sharing analysis and enhancement
Chair: Jennifer Harris

Maelstrom Research tools for data harmonization and co-analysis - Isabel Fortier and Dany Doiron

Opal and Mica: a software suite for data harmonization and federation - Vincent Ferretti

DataSHIELD demonstration - Paul Burton

ENMESHD - Madeleine Murtagh

Making data useful without direct sharing: Cafe Variome and Omics browsing - Anthony Brookes

Advanced Database and catalogue platforms: BiobankConnect and MOLGENIS - Morris Swertz

09:45-12:00

Stream 2: ELSI approaches and services
Chair: Ronald Stolk

Operationalizing responsible data sharing and access: GA4GH - Bartha M. Knoppers

BRIF: Bioresource Research Impact Factor - Anne Cambon-Thomsen

The BBMRI-ERIC ELSI Services - Jasper Bovenberg

The DataSHIELD legal analysis template - Susan Wallace and Jennifer Harris

Q&A ELSI

12:00-13:30

Lunch (incl. ECOUTÉR stand)

13:30-16:15

Parallel sessions – Data sharing tools, ELSI and results

13:30-16:15

Repeating Stream 1: Tools for data sharing analysis and enhancement
Chair: Ronald Stolk

Maelstrom Research tools for data harmonization and co-analysis - Isabel Fortier and Dany Doiron

Opal and Mica: a software suite for data harmonization and federation - Vincent Ferretti

DataSHIELD demonstration - Paul Burton

ENMESHD - Madeleine Murtagh

Making data useful without direct sharing: Cafe Variome and Omics browsing - Anthony Brookes

13:30-16:15

Stream 3: Study application and results
Chair: Lisette Giepmans

Risk stratification using genomic and lifestyle information -
Samuli Ripatti

Analysis of mixed effects models using federated data
analysis approach - Edwin van den Heuvel

EnviroSHAPER Noise Model and The Rapid Inquiry Facility (RIF); linking environment and health - Federico Fabbri and David Morley

Biosample quality for omics downstream analysis - Gabriele Anton

Omics in Healthy Obesity Project - Marja-Liisa Nuotio

16:15-17:00

Plenary session – After BioSHaRE

Mingling session to facilitate use of BioSHaRE results and tools in other projects

Closing remarks - Ronald Stolk